More Siding

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We put up more siding this past Saturday. It’s very exciting to see this last bit of work on the outside of the house coming together. The cedar siding certainly looks great to my eye. Sharon and I kept stepping back and looking at the house as each plank went up just to have the pleasure of admiring it. Figuring out how to make the cuts to accommodate the wheels and windows was challenging. I sat on the ground and stared at the windows for a while until Sharon made some calculations which allowed us to install that last long board there which is notched out an inch and a half under each window to fit.

Jim’s corner trim really makes the edges look smooth and neat, impressive work.

Thank you, everyone, for without you, none of this would be possible.

 

ps- cancer update: CA19-9 @ 49 as of Tuesday. Brand new ‘lesion,’ whatever that means, at the head of the pancreas. The thing measures 1.5cm. Cancer symptoms like back pain, stomach pain and indigestion are coming back as it grows.

Death Sentence

Randy Pausch, in his book, The Last Lecture, comments that when he saw his CA19-9 blood marker at the height of 250-ish, that he knew it was a death sentence. At the time of my diagnosis, this same marker was at 1450. Somehow two and a half years down the road, I’m still alive. As Dr Finnie (oncologist) says, everyone is different, and there’s no telling where cancer will take you.

Today, I had a blood draw. The CA19-9 is at 40. It has been trending up for the last three readings (blood tested every three weeks). One way to look at this is that my organs are repairing themselves as I recover and the marker is actually showing old cancerous activity as those cells are rooted out by my immune system. Or something like that. Mmmhmm.

It’s possible.

I am now scheduled for another CT scan next week, and I’ll have news about the imaging a week after that when Dr Finnie discusses the outcome with me. Until then, it’s “cancer, death,” echoing in my mind, oh probably only twice as often as before, like once every minute instead of once every two minutes.

ps- tiny house update: the roof appears to shed water as planned. The recent rains and flooding here really gave it a good test. Thank you everyone, for without you, none of this would be .

More Roofing

Hi Everyone.

Sharon and I hit a milestone yesterday when we installed the final roofing components. Here are some pix-

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IMG_0395  wool insulation

 

Our pal, Rick, accomplished much of the prep work at the end of the summer. Without this help, the build would have been a lot slower! I looked back through my notebook, and I found that I started installing metal on the roof about a month ago. I’m astonished to see the thing completed.

Next up, more siding.

Thank you, everyone. Without you, none of this would be possible. Thank you.

Big Tiny and the Roof

Hi Everyone.

Since I got back from Chicago, we’ve done a little roofing-

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Sharon and I were really excited to put these panels in place over the weekend. I took a long time to get comfortable with the pile of components sitting on the porch waiting for me to figure out how to assemble them. It’s kind of a lot of work, but it’s good work, interesting.

Speaking of Good Work, Crossroads College Prep school kids and Mike the teacher dropped by and put up some siding on the back wall of the house-

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Looking good there!

Thank you all for your help and continued support. You are the best!

In the Wind

A day or three ago, I loaded Triumph up with a milk crate and strapped a guitar on back along with my camping gear.

I’m in Chicago, currently, enjoying the view at the bean

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with an old pal whom I haven’t seen in neons. Mmmm. I have been starved for J’s company. A beautiful thing, playing with her, and making every gesture, every flick of the eyes, with the intention of doing the best possible action and creating art at every turn.

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Thanks for putting up with me, and playing along, that’s what I say.

You are all perfect as you are, and I could use a little work too. Best of to you!

Like, wow.

Rehab is really really stupifyingly something else in another order of magnitude. As in don’t even think you might someday, AWAKE,

I don’t remember much or round 2. But still.

But still sit still lie still lie still, until, well you know the rest down there beneath the earth.

They got millipeedeeans down there with infereority.

Nah, my ego is fine and so I go and and row and row along way tide.

1st to repeat it, boy, dumb.

Btu Sharon says my voice saved me, I think at one point.

I thought, hey istzzzt dat dare popcorn on a cob. I like down that muzzle

Yeah. Another false maybe. Right on, dude.

THIS is my work for the day, and still I knew I know I would have needed something some tiny

slip of paper with my name and address on it to see who I am after kicking the habit. WHOa.

I’ve been working with these images, fox &hisvixen and so on. As you can see, nothing less that 2 trips, bad trips, total buzzkill, enjoy you punk, let’s play finde te fountain pen. Rona, you’re up!

:

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Everyone, I think, still, sitttt still, son sit so still that I cant aloud all the way to seven.

& on that note

IloveYouthankYouImUSorry

There’s nothing to worry about & everything will be Okay.

vaya!

Cancer Book Call for Help

First of all, thank you everyone for your help.

Secondly, I need some more help:

I’m going to publish _Embracing Cancer_ (working title, the real title is much catchier) soon, like by Halloween. This book details the last two years or so of my life since a Stage IV Pancreas Cancer diagnosis and the way this situation has played out for me, what it means to be Cancerman along with some of Cancerman’s tips, which are quite different from standard protocol, to keep from losing your shit while you deal with cancer or someone you love who has cancer. At this point, I think I’ve established global relevance for this book, and I’ll shut up. If you want further details, the initial drafting for this book is finished, and I am therefore willing to discuss the content in detail (please select the cancer category and read everything that pops up before you start talking, or I will be forced to gently spank you when you start discussing).

Here’s what I need:

-Someone to run an Indiegogo campaign to raise money so that everyone gets paid on this job.

-If you know a designer that has experience doing kids books or other heavily illustrated books, I’d like to hear from that person. This person must be able to format the book for Kindle, at least two other electronic formats and for print on demand (POD).

-A photographer to photograph paintings, handwritten text and other illustrations for the book as well as prepping the photos for print. Photos must conform to industry standards for trade paperback publishing (POD).

-A line editor, POSITION FILLED. I’m pretty good at generating clean copy, but in this case, the drafting was done under the influence of chemo and associated drugs, so the copy is kind of rough. I would like someone to do this who has some experience working with my style and who actually likes my style rather than someone who wants to argue with about whether or not a hyphen needs to go between ‘water’ and ‘hose’ when I write the phrase, ‘water hose’ as opposed to ‘firehose’ or ‘water-hose’. If you can or know someone who can do this job without creating friction for me, I’ll give you a dollar and let you read the book 1st, as in you can be the very 1st person besides me to read the book.

-A marketing person who can do PR and marketing with only a tiny input from me. Hey, I have cancer, and I got no time for marketing or PR.

-A writer. Happily, I find that someone has already done the writing part of this job, and this position is filled.

Who’s in?

Just so you know, it really is nice to be able to think again a little. I don’t think chemobrain ever goes away, but at least I’m not on heavy painkillers anymore. Thank you all for your help. Whether you know it or not, you helped get through rehab last week. Thanks!

ps- tiny house update. Sharon and I are in process of hiring a couple guys to finish the metal roof and then the exterior is done except for siding. Students and some teachers are going to do the siding. Since the students did an excellent job framing the house, I’m pretty sure they can handle teh siding.

Rehab- this one goes out to AJ who made the fridge

I just went through rehab. For Percocet & morphine addiction. I am now free of opiates, these last 3 or 4, I’m not sure how many, days. Boy, that was a really weird experience. It was most un-boring. I was taking about 6-8 Percocet and 2 morphine per day to control pain with a medical Dr’s supervision. I hadn’t planned on coming off quite like this, but it’s done, I’m alive and I’m back on the streets of the STL on my Triumph.

 

After a week or two, I suppose I may stop trembling from fear, shock and withdrawals. Motorcycling in fast city freeway traffic is calming compared to that shit last week. Like wow, man.

 

To the good, Ms Mary Jane Secret is treating me right. So there is that. I mean, it’s a good thing I entered the program high as a kite, or damn, that would have been treacherous.

 

I hope you all are feeling happy just like me right now. I’m still a bit dizzy, but after only seven days of kicking the habit, I think I’m in fair shape. My hands have almost stopped shaking.

 

Thank you, Applejill & MR, your card and gifts came today. I never needed a lift more.

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Guitars

I spent the day fooling with guitars.

Thanks, Martin, for reminding me that I needed to post the rest of DF9G1N’s _Music For One Guitar_.

:-)

I’m pleased.

Here it is:

 

And I shot a photo of some guitars that I like, which I also played today:

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Time to start writing the next record.

Who wants a grab bag?

$150 plus actual shipping (probably like $37.27 from the STL to you). ALL GONE!

Package includes:

Mono brand hard gigbag that fits two guitars, the Dual model

Some leftovers from Mustang project (pickups, pots, wiring jack and switches to completely load a Mustang pickguard, solder 3 wires and you’re done), highlights include single coil sized Seymour Duncan Mini JB humbucker and a GFS high output lipstick.

Some leftovers from upgrading my Fender 60’s Lacquer jag: you get the pickguard, complete tremolo assembly and the complete bridge with thimbles and a Mastery sack to put all the bits in.

Here are some pix:

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